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Selected
Readings
BOOKS
Albery, N.,
The Natural Death Handbook. Virgin Books, 1993.
Ariés,
P., Western Attitudes toward Death from the Middle Ages to the Present.
Marion Boyars Publishers, 1994.
Barnard, C.,
Good Life, Good Death - a Doctor's Case for Euthanasia and Suicide.
Prentice-Hall, 1980.
Beauchamp T,
Childress J, Principles of Biomedical Ethics (4th Edition). Oxford
University Press, 1994.
Brody, Howard,
The Healer's Power. New Haven: Yale University Press, 1992. (Chapter
1 was published as "The Chief of Medicine," Hastings Center Report,
21(4):17-22, 1991).
Brody, Howard,
Stories of Sickness. New Haven: Yale University Press, 1987.
Byock, Ira.
Dying Well: Peace and Possibilities at the End of Life. New York:
Riverhead Books, 1998.
Caplan, Arthur
L., If I Were a Rich Man Could I Buy a Pancreas? And Other Essays
on the Ethics of Health Care. Bloomington, Ind.; Indiana University
Press, 1992.
Cassel, Christine
and Marilyn Field, eds. Approaching Death: Improving Care at the
End of Life. Washington, D.C. National Academy Press, 1997.
Despelder, Lynne
Ann and Albert Lee Strickland, eds. The Last Dance: Encountering
Death and Dying, 5th ed. Mountain View, Calif.: Mayfield Pub., 1999.
Doka, Kenneth
J., Living With Life-Threatening Illness: A Guide for Patients,
Their Families, and Caregivers. Jossey-Bass, 1998.
Garland, Michael
J., "Training the Piper to Play a New Tune" in Medical Education:
Making the Grade in Cost Containment. R. Cunningham, C. Friedman,
and B. Weaver (eds.), pp. 91-94. Battle Creek, Mich; W.K. Kellogg
Foundation Publication, 1986.
Garland, Michael
J., "From Manifesto to Enforceable Right: Oregon's Contribution
to Defining Adequate Health Care," in The Right to Health Care in
the United States: Conceptualization, Policy Implications, and Measurement
Standards. Audrey Chapman, ed., 1993.
Glick, Henry,
The Right to Die: Policy Innovation and its Consequences. New York;
Columbia University Press, 1992.
Hamel, R. ,ed.,
Choosing Death: Active Euthanasia, Religion and the Public Debate.
Park Ridge Center for the Study of Health, Faith, and Ethics. Philadelphia;
Trinity Press International, 1991.
Hill, Patrick
T., David Shirley, and Choice in Dying, A Good Death: Taking More
Control at the End of Your Life. A Merloyd Lawrence Book; Reading
, Mass.; Addison-Wesley, 1992.
Humphry, Derek.
Final Exit: The practicalities of self-deliverance and assisted
suicide for the dying. Hemlock Society, Eugene, Oregon, 1991.
Kaplan, Robert,
The Hippocratic Predicament: Affordability, Access, and Accountability
in American Medicine. San Diego; Academic Press, 1993.
Kastenbaum,
Robert J., Death, Society and the Human Experience. New York; MacMillan
Inc., 1991.
Kendig, H.,
A. Hashimoto and L.C. Coppard, eds, Family Support for the Elderly:
The International Experience. New York; Oxford University Press,
1992.
Kubler-Ross,
Elizabeth. On Death and Dying. Reprint. New York: S&S Trade,
1997.
Logue, B., Last
Rights - Death Control and the Elderly in America. Maxwell MacMillan.
1993.
Lynn, Joanne
and Joan Harrold, Handbook for Mortals. Oxford University Press,
1999.
Lynn, Joanne,
M.D. and Janice Lynch Schuster, with the Center to Improve Care
of the Dying and the Institute for Healthcare Improvement. Improving
Care for the End of Life: A Sourcebook for Health Care Managers
and Clinicians. New York: Oxford University Press, 2000.
McLean, S (ed.)
(1996). Contemporary Issues in Law, Medicine and Ethics. Dartmouth.
McLean, S (ed.)
(1996). Death, Dying & the Law. Dartmouth.
Moody, Harry
R., Ethics in an Aging Society. Baltimore; Johns Hopkins University
Press, 1992.
Morreim, E.
Haavi, Balancing Act: The New Medical Ethics of Medicine's New Economics.
Dordrecht; Kluwer Academic Publishers, 1991.
Morreim, E.
Haavi,"Rationing and the Law," in Rationing America's Medical Care:
The Oregon Plan and Beyond, pp. 159-184. M.A. Strosberg, J.M Wiener,
R. Baker, and I.A. Fein, eds. Washington, D.C.: Brookings Institution,
1992.
Meyer, Charles.
A Good Death: Challenges, Choices and Care Options. Mystic, Conn.:
23rd Publications, 1998.
Meyer, Charles.
Surviving Death: A Practical Guide to Caring for the Dying and Bereaved.
Mystic, Conn.: 23rd Publications, 1991.
Nelson, J.B.
and J.S. Rohricht, Human Medicine: Ethical Perspectives on Todays'
Medical Issues. Minneapolis; Ausburg Publishing House, 1984.
Nuland, S. How
We Die. Chatto & Windus, 1993.
Oaks, Judy and
Gene Ezell, Dying and Death: Coping, Caring, and Understanding.
Scottsdale, Arizona; Gorsuch Scarisbrick Publishers, 1993.
Quill., Timothy
E, Death and Dignity: Making Choices and Taking Charge. New York;
W.W. Norton, 1993.
Rachels, J.,
The End of Life: Euthanasia and Morality. Oxford University Press,
1986.
Sabatino, Charles,
"Age-based Rationing and the Law: An Exploration," with Nancy Neveloff
Dubler, in Too Old for Health Care? Controversies in Medicine, Law,
Economics, and Ethics. R.H. Binstock and S.G. Post, eds., Johns
Hopkins University Press, 1991.
Shavelson L.
(1995). A Chosen Death - The Dying Confront Assisted Suicide. Simon
& Schuster.
Singer, P.,
Rethinking Life & Death - The Collapse of our Traditional Ethics.
Oxford University Press, 1995.
Tobin, Daniel
and Karen Lindsey. Peaceful Dying: The Step-by-Step Guide to Preserving
Your Dignity, Your Choice and Your Inner Peace. Reading, Mass.:
Perseus Books, 1998.
Webb, Marilyn.
The Good Death: The New American Search to Reshape the End of Life.
New York: Doubleday, 1999.
SPECIAL
REPORTS
Appleton International
Conference; Journal of Medical Ethics, Vol 18(3), 1992. Part I: "Decisions
involving patients who have decision-making capacity or patients who
have executed an advance directive before losing this capacity," pp
6-9. Part II: "Decisions involving patients who have lost the capacity
to make decisions and who have not executed an advance directive,"
pp. 10-12.
"Consumers'
guide for planning ahead: The health care power of attorney and
the living will. An information paper." United States. Congress.
Senate. Special Committee on Aging. U.S. G.P.O. 1992. (SUDOCS: Y
4.AG 4:S.PRT.102-106)
"Deciding to
forego life-sustaining treatment: A report on the ethical, medical,
and legal issues in treatment decisions." President's Commision
for the Study of Ethical Problems in Medicine and Biomedical and
Behavioral Research, U.S. G.P.O., 1983. (SUDOCS: Pr 40.8"Et 3/L
82/2)
"Guidelines
for the appropiate use of do-not-resuscitate orders." Council on
Ethical and Judicial Affairs, American Medical Association, Journal
of the American Medical Association, 265(14):1868-1871, 1991.
Law, Medicine
and Health Care, 20(4), 1992:
- Cranford,
R. and Gostin, L., "Futility: A concept in search of a definition,"
pp. 307-309.
- Miles, S.H.,
"Medical futility," pp. 310-314.
- Koch, K.A.
et al., "Analysis of power in medical decision-making: an argument
for physician autonomy,"pp. 320-326.
- Alpers, A.
and Lo, B., "Futility: Not just a medical issue," pp. 327-329.
- Grant, E.R.,
"Medical futility: Legal and ethical aspects," pp. 330-335.
- Brennan,
T.A., "Physicians and futile care: Using ethics committees to
slow the momentum," pp. 336-339.
"Practicing
the PSDA." A Hastings Center Report Special Supplement. Hastings
Center Report, 21:S1-S16, 1991.
Special Issue:
Nursing in hospice and terminal care: Research and practice. Hospice
Journal, Vol 2(1), 1986. Martocchio, B.C., "Agendas for quality
of life," pp. 11-21.
Special Issue:
Quality of Life. Journal of Palliative Care, Vol. 8, 1992.
- Berardo,
D.H. and F.M. Berardo, "Quality of life across age and family
stage," pp. 52-55.
- Cella, D.F.,
"Quality of life: The concept," pp. 8-13.
- Cohen, S.R.
and B.M. Balfour, "Quality of life in terminal illness: Defining
and measuring subjective well being in the dying," pp. 40-45.
- Schacter,
S., "Quality of life for families in the management of home care
patients with advanced cancer," 61-66.
- Towlson,
K.E. and R.D. Rubens, "Quality of Life: Outcome evaluation," pp.
22-24.
ARTICLES
General
and Medical/Ethical Issues
American Nurses
Association, "Position Statement on Nursing Care and Do-Not-Resuscitate
Decisions." Medical Ethics Advisor, American Health Consultants, 9(5):51-53,
1993.
Ames, K., "Last
rights: In sickness and in health, more people are taking life's
biggest decision away from doctors and into their own hands." Newsweek
(Cover story) 118(9):40-41, (Aug 26 )1991.
Angell, M.,
"The Case of Helga Wanglie: A New Kind of 'Right to Die' Case."
New England Journal of Medicine, 325(7):511-512, 1991.
Annas G.J.,
et al., "Bioethicists' statement on the U.S. Supreme Court's Cruzan
decision." New England Journal of Medicine, 323(10):686-687, 1990.
Begley, S.,
"Choosing death." (Families learn to cope with decisions of loved
ones) Newsweek, 118(9):42-45, (Aug 26) 1991.
Blake, Patricia. Going
Gentle into That Good Night. Do Suicide Manuals Help Create a Bias
Towards Death? Time, USA. March 21, 1983.
Brockopp, D.,
"Palliative care: Essential concepts in the education of health
professionals." Journal of Palliative Care, 2:18-23, 1987.
Brody, Howard,
"Assisted Death — A Compassionate Response to a Medical Failure."
New England Journal of Medicine, 327(19):1384-1388, 1992.
Brody, Howard,
"Futility and the Ethics of Resuscitation," with T. Tomlinson. Journal
of the American Medical Association, 91:580-585, 1991.
Brody, Howard,
"Causing, Intending, and Assisting Death." Journal of Clinical Ethics,
Summer 1993.
Burke, T.P.,
"Alternatives to hospital care under employee benefit plans." Monthly
Labor Review, 114:9-15, 1991.
Cooper, K.S.,
"Physician-assisted suicide: Promoting rights or abuse?" ONA (Ontario
Nurses Association) News 8(2):3, 1993.
Coyle, N.,
"The euthanasia and physician-assisted suicide debate: Issues for
nursing." Oncology Nursing Forum 19(7): 41-46, 1992.
Daly, B.J.,
et al, "Withdrawal of mechanical ventilation: Ethical principles
and guidelines for terminal weaning." Am J Critical Care 2(3):217-223,
1993.
Dyck, A.J.,
"Physician-assisted suicide: Is it ethical?" Trends in Health Care,
Law and Ethics, 7(2):19-22, 1992.
Emanuel, L.L.
and E.J. Emanuel, "Decisions at the end of life: Guided by communities
of patients." Hastings Center Report, 23(5):6-14, 1993.
Fadiman, Anne. Death
News: Requiem for the Hemlock Quarterly . Harper's Magazine, USA.
April, 1994. pages 74-82.
Fairbairn, G.,
"Enforced death: Enforced life." (Qualtity of life as a basis in
enforcing death or life) J Medical Ethics, 17(3):144-149, 1991.
Fried, T.R.,
et al., "Limits of patient autonomy. Physician attitudes and practices
regarding life-sustaining treatments and euthanasia." Archives of
Internal Medicine, 153(6):722-728, 1993.
Garland, Michael
J., "Justice, Politics and Community: Expanding Access and Rationing
Health Services in Oregon." Law Medicine & Health Care, 20(1-2):67-81,
1992.
Hendin, H.
and Klerman, G.L., "Physician-assisted suicide: The dangers of legalization."
Am Journal of Psychiatry, 150:143-5, 1993.
"Hospice and
respite care." Hearing before the Special Committee on Aging, United
States Senate, One Hundred First Congress, Second Session, Elizabeth,
New Jersey, June 18, 1990.
Hunt, R.W.,
"A critique of using age to ration health care." J Med Ethics, 19(1):19-23;
discussion 24-27, 1993.
Jones, D.A.
and Peters, T.J., "Caring for elderly dependents: Effects on the
carers' quality of life." Age and Aging, 21:421-8, 1992.
Kass, L.R.,
"Is there a right to die?" Hastings Center Report, 23:34-43, 1993.
Kinzel, T.,
et al., "Palliative care: Attitudes and knowledge of hospital-based
nurses and physicians." Loss, Grief and Care, 6(2-3):85-95, 1992.
Koop, E.C.,
"Decisions at the end of life." Proceedings of the American Philisophical
Society, 134:230-42, 1990.
Landers, R.K.,
"Right to die: Medical, legal & moral issues." Editorial Research
Reports, 1(36):554-567, 1990.
Lentzner, H.R.
et al., "The quality of life in the year before death." American
J ournal of Public Health 82(8):1093-1098, 1992.
Lysaught, Therese
M., "Communique: 'Physician Assisted Suicide: Progress or Peril?"
Ehik in der Medizin, Winter 1993.
Lysaught, Therese
M., "Patient Suffering and the Anointing of the Sick." The Cresset:
A Review of Literature, Arts, and Public Affairs, 55:15-21, (February)
1992.
Lysaught, Therese
M., "How Autonomy Seduced the Meaning of Human Life: A Commentary
on Daniel Callahan's 'How Technology Seduced the Sanctity of Life'."
First Things (forthcoming).
Linn, M., et
al.., "Effect of nursing home staff training on quality of patient
survival." International Journal of Aging and Human Development,
28:305-315, 1989.
Misbin, R.I
and Miller, D.H., "Make me live": Autonomy and terminal illness.
Hastings Center Report, 20(5):42-44, 1990.
Morreim, E.
Haavi, "Profoundly Diminished Life: The Casualties of Coercion."
Hastings Center Report, 24(1):33-42, (Jan-Feb) 1994.
Morreim, E.
Haavi, "Am I My Brother's Warden? Responding to the Unethical or
Incompetent Colleague." Hastings Center Report, 23(3):19-27, (May/June)
1993.
Morreim, E.
Haavi, "Impairments and Impediments in Patients' Decision Making:
Reframing the Competence Question." Journal of Clinical Ethics,
4(4):294-307, (Winter) 1993.
Orentlicher,
D., "The illusion of patient choice in end-of-life decisions." Journal
of the American Medical Association, 267(15):2101-2104, 1992.
Orlowski, J.P.,
et al., "Forgoing life-supporting or death-prolonging therapy: A
policy statement." Cleveland Clinical Journal of Medicine, 60(1):81-85,
1993.
Paris, J.J.,
et al, "Beyond Autonomy--Physicians' Refusal to Use Life-prolonging
Extracorporeal Membrane Oxygenation." New England Journal of Medicine,
329(5):354-357, 1993.
Quill, T.E.,
"Death and Dignity: A Case of Individualized Decision Making." New
England Journal of Medicine, 324(10):691-694, 1991.
Quill, T.E.,
et al., "Care of the Hopelessly Ill: Proposed Clinical Criteria
for Physician-Assisted Suicide." New
England Journal of Medicine, 327(19):1380-1384, 1992.
Richmond, S.
and Roha, R.R., "Living wills: Avoiding the pitfalls." Changing
Times, 44(11):104-105, 1990.
Slomka, J.,
"The negotiation of death: Clinical decision making at the end of
life." Social Science and Medicine, 35:251-9, 1992.
Solomon, M.Z.,
et al., "Decisions near the end of life: Professional views on life-sustaining
treatments." (Public Health Policy Forum) American Journal of Public
Health, 83(1):14-23, 1993.
Van-Eys, J.,
"The ethics of palliative care." Journal of Palliative Care, 7:27-32,
1991.
Vogel, H.,
"Attitudes of physicians toward hospice, palliative care, dying,
and death." Loss, Grief and Care, 6:109-115, 1992.
Walker, C.,
"Life-sustaining treatment: The physician's role in decision-making."
Geriatrics, 47(1):68-70, 1992.
Wear, A.N.,
and Brahams, D., "To treat or not to treat: The legal, ethical and
therapeutic implications of treatment refusal." Journal of Medical
Ethics, 17(3):131-134, 1991.
Weir, R.F.,
"The morality of physician-assisted suicide." Law, Medicine and
Health Care 20(1-2):116-26, 1992.
Wolkenstein,
A.S. and Butler, D.J., "Quality of life among the elderly: Self-perspectives
of some healthy elderly." Gerontology and Geriatrics Education,
12:59-68, 1992.
Cross-Cultural
and Religious Issues
Bresnahan, J.F.,
"Catholic spirituality and medical interventions in dying." America,
164(24):670-675, 1991.
Cameron, N.M.de
S., "Living wills and the will to live." Christianity Today, 36(4):22-24,
1992.
Capron, A.M.,
"Euthanasia in the Netherlands: American observations." Hastings
Center Report, 22(2);30-33, 1992.
Doyle, D.,
"Have we looked beyond the physical and psychosocial?" Journal of
Pain and Sympton Management, 7:302-311, 1992.
House, D.M.,
"Advance medical directives and the role of the church." The Christian
Century, 108(35):1137-1139, 1991.
Muller, J.H.
and Desmond, B., "Ethical dilemmas in a cross-cultural context.
A Chinese example." West J Med, 157(3):323-327, 1992,
O'Neill, W.M.,
et al., "Hospital palliative care services: Three models in three
countries." Journal of Pain and Sympton Management, vol. 7, 1992.
Wreen, M.J.,
"Autonomy, religious values, and refusal of lifesaving medical treatment."
Journal of Medical Ethics, 17(3):124-130, 1991.
Legal
Issues
Annas, G.J.,
"Physician-assisted Suicide -- Michigan's Temporary Solution." Legal
Issues in Medicine, New England Journal of Medicine, 328(21): 1573-1576,
1993.
Garland, Michael
J., "Light on the Black Box of Health Care: Oregon's Contribution
to the National Movement Toward Universal Health Insurance." Yale
Review of Law and Policy, 10(2):409-30, 1992.
Glick, H.R.,
"Judicial innovation and policy re-invention: State supreme courts
and the right to die." Western Political Quarterly, 45:71-92, 1992.
Goldberb, M.Z.,
"Court guidelines issued for right-to-die cases." Trial 28(3):79-81,
1992.
Gostin, L.O.,
"Drawing a line between killing and letting die: The law, and law
reform, on medically assisted dying." J Law, Medicine and Ethics,
21(1):94-101, 1993.
Hadorn, D.C.,
"Emerging parallels in the American health care and legal-judicial
systems." American Journal of Law & Medicine, 18(1-2):73-96, 1992.
Kamisar, Y.,
"Are laws against assisted suicide unconstitutional?" Hastings Center
Report, 23(3):32-41, 1993.
Mearns, M.
"The states, right-to-die laws and active enthanasia." Legal Reference
Services Quarterly, 12:59-104, 1992.
Morreim, E.
Haavi, "Blessed be the Tie that Binds? Antitrust Perils of Physician
Investment and Self-Referral." Journal of Legal Medicine, 14(3):359-412,
1993.
Sabatino, Charles,
"Consumer-Directed Homecare: What Makes it Possible?" with S. Litvak,
Generations, (a journal of the American Society on Aging), 16(1):53,
(Winter) 1992.
Sabatino, Charles,
"Death in the Legislature: Inventing Legal Tools for Autonomy,"
New York Review of Law & Social Change, 19:309, 1991-92.
Sabatino, Charles,
"Surely the Wizard Will Help Us, Toto? Implementing the Patient
Self-Determination Act," Hastings Center Report, 23:12 (Jan-Feb)
1993.
Sabatino, Charles,
"Health Care Powers of Attorney: An Introduction and Form," American
Bar Association Commission on Legal Problems of the Elderly, 1990.**
Sabatino, Charles,
"Patient Self-Determination Act State Law Guide," American Bar Association,
1991. (Available from the American Bar Association Commission on
Legal Problems of the Elderly, 1800 M Street, Washington, D.C. 20036-5886.
van der Maas,
P. J., "Euthanasia and other medical decisions concerning the end
of life." An investigation performed upon request of the Commission
of Inquiry into the Medical Practice concerning Euthanasia." Health
Policy, 22:3-262, 1992.
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